Dubbo resident Allison McCarney says the National Disability Insurance Scheme [NDIS] are refusing to help her despite being a month away from having major brain surgery.
Ms McCarney has severe epilepsy caused by a massive brain lesion, which is among three in Ms McCarney's brain.
She experiences both petite seizures and violent generalised tonic-clonic seizures.
Ms McCarney says the surgery is necessary as she's built a tolerance to her twelve-daily medications which no longer work to stabilise her seizures.
Without the surgery, doctors have said the 44-year-old will be lucky to see 50.
A spokesperson for the National Disability Insurance Agency (NDIA), which is an independent statutory agency whose role is to implement the NDIS, said they are currently in contact with Ms McCarney to discuss the situation.
"The NDIA is in contact with Ms McCarney and will continue to work with her to obtain all necessary information to support her request to access the NDIS," the spokesperson said.
But Ms McCarney said she is sceptical any help will be given to her in time for her operation.
"They always have another excuse, my operation is coming up, and I still have no help," she said.
Ms McCarney underwent a deep electrode implantation procedure in February of this year.
The procedure, which is mild compared to the surgery Ms McCarney is set to face, stimulates the brain to bring epileptic fits on for monitoring.
The procedure allowed Doctors to locate the problem areas in her brain.
Currently, Ms McCarney relies on her adult children or boyfriend to care for her.
"I can't shower myself, I'm not allowed to drive, I'm not allowed to cook, I sleep with bamboo pillows, so I don't suffocate in my sleep, I can't leave the house on my own, so I need aftercare," she said.
Ms McCarney told the Daily Liberal without the help from NDIS she won't have any form of a support system after the operation.
I can't shower myself, I'm not allowed to drive, I'm not allowed to cook, I sleep with bamboo pillows so I don't suffocate in my sleep, I can't leave the house on my own, so I need aftercare.Allison McCarney